PANDAS/Lyme Terminology

A

Acute: severe, intense

ADD: Attention Deficit Disorder (without the hyperactivity; see ADHD)

ADHD: “Attention-deficit/hyperactivity disorder (ADHD) is a neurobiological disorder characterized by developmentally inappropriate impulsivity, inattention, and in some cases, hyperactivity.” - See more at: http://www.chadd.org/understanding-adhd.aspx#sthash.06vMekFn.dpuf

Amoxicillin: antibiotic –See more at: http://www.nlm.nih.gov/medlineplus/druginfo/meds/a685001.html and antibiotic –See more at: http://pandasnetwork.org/treatments/antibiotics/

Anaplasma – a tick-borne disease – See more at: http://www.lymediseaseassociation.org/index.php/about-lyme/other-tick-borne-diseases/ehrlichiosis

Antibiotics: “Antibiotics are powerful medicines that fight bacterial infections. Used properly, antibiotics can save lives. They either kill bacteria or keep them from reproducing.” http://www.nlm.nih.gov/medlineplus/antibiotics.html;  antibiotics are often used to treat PANDAS/PANS and Lyme Disease

Antibodies: “An immunoglobulin, a specialized immune protein, produced because of the introduction of an antigen into the body, and which possesses the remarkable ability to combine with the very antigen that triggered its production.

The production of antibodies is a major function of the immune system and is carried out by a type of white blood cell called a B cell (B lymphocyte).” http://www.medterms.com/script/main/art.asp?articlekey=19101

APD - Auditory Processing Disorder; can be one of many symptoms of Lyme Disease

Arthritis-can be a symptom of Lyme Disease

ASO: Antistreptolysin O Titer. Measured after a blood test and used to detect recent strep infections. Anti-dNase B test is often ordered at the same time.

Augmentin: antibiotic –See more at: http://pandasnetwork.org/treatments/antibiotics/

Autoimmune -The body's immune system attacks its own cells

Azithromycin: antibiotic –See more at: http://pandasnetwork.org/treatments/antibiotics/


B

Babesia - malarial-like infection spread by ticks

Bacteria

Banderol - Nutramedix herbal drops used for treating Lyme

Bands

Bartonella

Biofilm

Blood brain barrier

Blood tests

Borrelia - Lyme


C

CamKinase

CBT - Cognitive Behavior Therapy

CDC - Center for Disease Control

Chronic - lasting

Co-infections - other tickborne infections (often refers to Babesia, Bartonella, Erlichia, Anaplasmosis, etc.)

Compulsions

Congenital -transmitted to baby from mother via placenta

Cunningham Panel

Cyst


D

DD - Dear Daughter (an abbreviation used in support groups)

DH - Dear Husband (an abbreviation used in support groups)

DS - Dear Son (an abbreviation used in support groups)

DW - Dear Wife (an abbreviation used in support groups)

Doxycycline -antibiotic; sometimes abbreviated as Doxy


E

EBV - Epstein Barr Virus; also research mononucleosis; cause of great fatigue

ELISA - a test for Lyme that was originally created to help determine statistics; is only about 50% effective

Emotional Lability

Ehrlichia -tickborne infection

erythema migrans (EM): bull’s eye rash that sometimes results from a tick bite


F


G

GABHS

genetic testing


H

Homeopathy


I

IDSA -Infectious Diseases Society of America; much of this group does not yet acknowledge chronic Lyme

Igenex - gold standard in Lyme testing; picks up antibodies so is fallible if the body is immune suppressed and unable to fight bacteria

IgG - shows past infection

IgM - shows current infection

ILADS - International Lyme and Associated Diseases Society

Immune system

Immunologist

 

IVIG: Intravenous Immunoglobin; can be used to treat immune deficiencies, PANDAS/PANS and Lyme.

J

Jekyll and Hyde: a symptom we see in some people suffering from PANS and Lyme/Bartonella. Looks a little like bipolar. Happy one moment, silly, then tantrum, angry. Also refers to the personality changes we see in our kids.

Joint inflammation - not atypical with Lyme Disease


K


L

LLMD: Lyme Literate doctor; a doctor who goes by ILADS guildelines; a doctor who recognizes that Lyme can be chronic and is not cured with 3 weeks of antibiotics.

Lyme - borrelia; a bacteria spread by ticks (or congenitally.) Can lie dormant or can result in 100s of sympotms.


M

Metal toxicity

MGH: Massachestts General Hospital; they have an outpatient PANDAS department.

Minocycline

Moleculera Labs

MTHFR - methylenetetrahydrofolate reductase

Mycoplasma


N

Neurologist

Neuropsychiatric

Neuropsychologist

Night terrors

NIMH: National Institute of Mental Health


O

Obsessions

OCD - Obsessive Compuslive Disorder

ODD - O  Deviant Disorder

Onset

Optometrist


P

PANDAS: Pediatric Autoimmune Neuropsychiatric Disorder Associated with Streptococcus

PANS: Pediatric Acute-Onset Neuropsychiatric Disorder; autoimmune encephalitis that can be caused a multiple of triggers including but not limited to: flu, pneumonia, coxsackie, Lyme, strep, vaccines

Parasites

Pediatrician: Doctor specializing in working with babies, children, teens

Penicillan: antibiotic –See more at: http://pandasnetwork.org/treatments/antibiotics/

Plaquenil - antibiotic

Plasmapheresis

Prednisone - steroid

Probiotics - healthy bacteria for the gut (intestines)

Psychiatrist: MD with psychology training; can prescribe medication.

Psychologist: PhD or PsyD. Specializes in counseling and/or play therapy; does not prescribe information but will consult with a psychiatrist if needed.

PTSD: Post-Traumatic Stress Disorder. Many PANDAS parents suffer from this.


Q

R

Rage - can be a symptom of Bartonella as well as PANS

Round body


S

Samento  - Nutramedix herbal drops used for treating Lyme

Seronegative

SIB: Self-Injurious Behavior

Sleep-walking

Spirochete

Steroids

Streptococcus

Swedo, Dr. Susan

Sydenham Chorea

Symptoms


T

Tic: an involuntary vocal or motor

Tick - small insect capable of carrying many diseases. Spread from birds and rodents.

Tindamax - antibiotic

Titers

Tourette's


U

Urinary issues - can be a symptom of PANS


V

Virus


W

Western blot


X


Y

Yeast


Z