Ode to my Hero
our Hobbit baby
curly hair, round face who liked two breakfasts
Brown-eyed toddler, draped over me,
watching Dick Van Dyke dance to 'Me 'Ol Bam-Boo'
in Chitty Chitty Bang Bang
again
again
again
Now my 6th grade boy plops himself in my lap
he wishes I were strong enough to pick him up,
he is nearly my height, same size feet and hands
When my friend talks about macaque monkeys,
my boy asks, What kind? There are 24 different macaque species.
He asks why his sister cries
(although he tries to make her cry other times)
He catches house spiders in her room so she can sleep
and scares her with talk of ghosts
Long ago, in a Brooklyn December,
he wanted to know why there were Pilgrims on the sidewalk.
(Pilgrims with yalmulkes under their hats)
then, he wore a yalmulke to school for a week
His first words? "Tickle, tickle" as he ran after
eighty pounds of German Shepherd plumed tail
He bicycles with me, thin legs pumping
in his ultra-wide, neon skateboard sneakers
thirty miles
hilly roads
forty miles.
with every small and large joint paining him,
without complaining
so that I'd know
racing me up the hills
Rising early for football with his team
proud of his jersey, his pads, his tackles
running with friends in the street
searching for the mysterious swamp where someone once died, they say
where they will build a bridge
and a fort
He read The Chronicles of Narnia at 9
when he could still read without those hateful mind monsters
Grew to love Shakespearean tragedies
when home from school on new medication
stayed up till midnight one mid-summer night
for the fight scene in Hamlet
Said it was worth it
and closed his eyes on the car ride home
Staged his own Egyptian mummy exhibit
after visiting the Metropolitan Museum
his own zoo on his bed after a Bronx Zoo trip
and his own sword fights
after seeing Jedi warriors fight
Writes raps (don't call them poems, Mom!)
about the mean games his diseases play on his mind
and tells his teacher that he climbed out his bedroom window one crazy night
and nearly killed himself
Back when needles meant allergy shots
He'd pretend the alcohol swabs were excruciating
and that the needles felt soooooo good
Now, he watches as the nurse slides the IV needle into his arm
he lies down for slim acupuncture needles
or waits for needles to collect his blood
6 vials
9 vials
can't find a vein
swallows his medicine, vitamins, probiotics, remedies
so many pills of red-yellow-blue-white
day after day, morning, night
the other evening, he came in early from outside
because he felt the rage
that had taken him the night before
he needed to be far from people
I told him how proud I am
of his awareness, his control
the way that he is handling this disease
(that confuses so many)
How would I handle a Lyme Disease that blew my mind away at times?
Lyme that curdled my joints
and PANDAS that made me shrivel whenever a fork scraped a plate
that made me clear my throat
again
again
again
In February of 2010, he cried out,
"This is a nightmare! I just want to wake up!"
I promised him he would get better
that we would figure out what was wrong
I still believed in band-aids and kisses
We had no clue
We are still trying to wake up today
But this boy keeps fighting
What is your meaning in life? I ask,
And he says, it's to fight and get better
he wills it
We work for it
We're a team and we'll beat this thing
to save my strong little Hobbit
Note: there is a new book out that I intend to read: How Children Succeed: Grit, Curiosity, and the Hidden Power of Character by Paul Tough. My son has grit, curiosity and character. I know he will succeed.
Reader Comments