I want to wear blue wings and soar

above the screaming

tantrums of today

I will take you with me

(hold you)

as we gaze down

upon whispery earth

at tiny beings

scuffling about

checking their clocks

and bank accounts

Ah,

the life of a bird

who does not love so much

that it hurts

 

 --LWK

 

 

 

Tuesday
Oct082013

Giddy over Awareness! Finally!

It's after 9 PM and I should be getting ready for bed. But I'm sooooo excited! Tomorrow is the FIRST ever PANDAS/PANS/PITANDS Awareness Day. 

My son is 12. He became sick almost overnight when he was 8, going on 9. We had no idea what was going on. He was suddenly depressed, tic-ridden, living some unspoken nightmare. We actually wondered if someone had abused our son. We didn't know then that a bacterial infection could result in such a horrible illness.

And that's why I have this blog. To speak out in the hopes that our words and experiences will help another child. Our child is on his way to recovery. It's possible, but first parents and doctors must know that PANDAS and PANS exist. 

Now, 18 U.S. states, 4 cities and the country of Italy have proclaimed Oct. 9 as PANDAS Awareness Day. I just came across this video and it's a must-see. 

Wear black and white tomorrow. Put out black and white balloons. Tell people about this disease. You just might save a life. 

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